Here's the deal
Friday, March 30, 2012
Tuesday, March 27, 2012
My sister, Fawn, and my Mother came stayed with Wes for several hours today which gave Karen and me the opportunity to run some much needed errands. We also were able to get cleaned up at Brittnee’s…which was also, much needed.
Wes shows improvement every single day. He still battles with an upset stomach that often makes him feel like he is going to throw up and lately he does throw up once a day. He is eating a little better this week and for the first time since his accident he did not lose weight this week.
Wednesday, March 28, 2012
Today Wes really improved. On Saturday, his therapist stood him up for the first time since the accident and he was able to stay up for a few minutes. Today, Barb stood him up and gave him a goal of 10 minutes and he made it. He is getting stronger and slowly gaining more control over his wrists and arms.
Tonight we played a game where we would put Gushers (a fruit snack) on his chest and he would have to grab it and put it in his mouth. I did the same thing with a fruit-by-the-foot. We would pull off a piece and put it on his chest and he would work at getting it and putting it in his mouth. We were able to work on the speech recognition software today and it is coming along.
Today was shower night and Wes enjoys shower nights much better with Karen and I helping him. We let him take long hot showers and when the nurses or techs help him shower it is usually short because they are so busy. Let me just say again that our caregivers, nurses and therapists, are the best; we have really enjoyed getting to know them.
Thursday, March 29, 2012
My sister, Gina, and her son, Joshua, came by and stayed with Wes today so that Karen and I could go vehicle shopping. We took care of several errands and Wes did very well again with his workouts. His arms and shoulders get very sore. Very dear friends came and visited this evening the time passed by very quickly.
I failed to mention that on Monday our very close friends, Ray and Lori, came by. They visited us when we first got to Arizona, at that point Wes could only move his left arm and it was a very small movement. When Wes showed Ray the movement in his left arm Ray asked if he could move his right arm.
Wesley replied, “Not yet.”
When Ray and Lori came by on Monday they brought him a green shirt with the words ‘Not Yet’ printed on it.
Today Wesley moves his right arm very well and is now controlling his wheelchair with it.
Miracles happen and Not Yet are principles we live by. We are grateful beyond belief for the prayers that keep us moving forward. Karen, Wesley and I, along with the rest of our family are on a difficult, inspiring, and humbling journey.
Wednesday, March 28, 2012
I have posted a ton of videos and an update and some more videos today so be sure to see it all. My bro is pretty darn awesome.
- Wesley's nephews are riding with Wes. He is very protective of them and holds them in with his arms.
-Nana is wearing one of my favorite necklaces she has... my dad got it for her in Peru.
- Nate is very popular with his daughters and is wearing his team Wesley bracelet.
- Ari is a little stubborn.
-Everybody is leaving the women with babies behind.
Well Hello Everybody,
I’m sure you have all been missing ‘Ryanne’s Random Facts.’ I actually have a little bit of a story about myself that made Wesley laugh the other day so I guess I need to tell it on here so he can laugh at me again and the fact that I put this story up for all to see…
If you want to skip this story just scroll down, I made the start of Wes’ update in bold and blue.
Recently, Ben and I went out to eat with our friends, The Hawkes. We are leaving Louisiana soon and so we want to spend as much time with our friends as we can. We went a steak house. It is one of those restaurants with an unlimited supply of peanuts and after eating them you just toss the shells on the floor. It’s amazing.
Ben and I, being the carnivores that we are, both ordered our medium rare sirloins. DELISH! Seriously, every bite is heaven. We were having a great time. Half way through the meal I had to get up to use the restroom. For some odd reason, I always use the first stall if it is available. The door seemed a little odd. The locking mechanism was stiff but I didn’t really pay attention, with a little force the door closed… a few minutes later I realize I cannot get the door to open back up.
Whenever I am in a potentially awkward situation I feel like the air temperature around me raises about ten degrees… I was feeling it.
Luckily, my phone was in my pocket. I called Ben and this is our conversation:
Ben: Are you stuck in the toilet?
Ry: No, I’m stuck in the stall. I can’t get the stupid door open.
Ben: (starts laughing a little bit) I’ll send Shelby in to help you.
A few seconds later Shelby comes in, and with both of us trying to twist the lock it doesn’t budge so we do the only logical thing.
Shelby karate kicks the door.
Do I have any other option at this point. There is no way I am going to ask for more people to come in and try to get me out of the bathroom stall, and there is NO WAY I am going to crawl underneath the stall. The only way out is over the top, obviously.
For those of you who don’t me, I’m not as athletic as I once was and I am rather clumsy. I stood on the toilet and the top of the stall still came to about my shoulders. Luckily, I was in the first stall because I could land on the sink on the other side. I’m not about to explain how I got over; I’ll let you use your imagination. Somehow, when my siblings imagined all this it made them crack up.
Update on Wes from My Dad
Sunday was a great family day for us. Wes was permitted to leave the hospital grounds and travel, by wheelchair, off property. The Nate & Britt Family and the Dallin & Ashley Family joined us. It was a beautiful sunny day and we took a long walk around the hospital with wheelchair, strollers, and kids in tow. Wesley frequently had two little boys riding in his lap.
Somebody found Papa’s glasses. These girls are funny.
Earlier in the day dear friends from the Greenway Ward brought us the sacrament and share some thoughts with us. We had another family here in rehab join us. It was Gina and Steve and their family. we really enjoyed visiting with them. It was a great day. It was even better because Nate stayed the night with Wes and gave Karen and I another break to sleep in a regular bed. We sure have the best kids.
It was back to work and no fooling around. when we got to the hospital Nate had Wes dressed and ready to go. We spent more time this evening working with Wes on the dragon software, it takes a long time to go through the tutorial but we are making progress. Eventually, we will need some advanced help but we are making some progress.
Wes continues to feel everything, only no muscles control in his legs and down. He can tell when his feet are not just right or his knee is bent differently and he has been holding a grudge because I stepped on his toes a few days ago and they still hurt and bother him. we have not heard from a credible source but we think that is a good sign. He looks remarkably good and healthy. He still needs to eat a little better. We are still trying to find a vehicle to transport him in, but we are making progress. Tomorrow should be a great day.
Tuesday, March 27, 2012
March 24, 2012
The last few days have brought significant improvements in Wesley’s physical therapy. He is increasing in strength and stamina. He is getting much better in rolling from side to side; this is pretty difficult considering he gets no help from his legs (I just got down on the ground and tried this; it felt like a work out). His balance is getting better as his core strength continues to improve. The development of his stomach muscles is also assisting in his core strength and balance. Shoulders and arms continue to improve and are gaining strength daily.
On Saturday, Barb, our amazing therapist, put Wes in a device that gets him standing upright. The machine completely supports his body weight and gets him upright. He did really well. After being prone for so long it takes the body a while to get used to standing. Typically, blood pressure goes down drastically and light headedness and dizziness can occur causing the person to throw up. Wes went up three different times, the longest time being about 3 minutes. He did great for his first time. Barb will get him standing up a few times a week. He has also started spending time on his stomach for the first time.
Family and friends keep bringing meals in to keep us going. It is surprising that we have been here so long and Wes still has not gotten used to hospital food. My parents usually don’t care for it either. It has been a good week for receiving care packages from home and cards and letters. Wes is always so excited to get the cards and packages, it brightens his day.
Saturday, Wes was in an especially good mood. He only had a 30 minutes session of physical therapy but my mom worked with him most of the day with his fine motor skills. They also spent about 90 minutes learning how to use the dragon naturally speaking software and they are finally making some progress. He has a lot more to learn before he can use it for school but he is moving in the right direction.
Dallin spent the night with Wes on Saturday night so my parents could get a full nights rest. It is nice for them to get a break. Nate also stays with Wes one night a week. My dad suspects they will be there for about another four weeks and is not sure where they will be after that.
The videos say more than any words I could type on here. Thank you everyone for your thoughtfulness. Please continue to keep Wesley in your prayers. Miracles are continuing to happen.
OH yeah, How do you all like Wesley’s haircut? I love it.
Thursday, March 22, 2012
Tuesday, March 21, 2012
Today was a monumental day. Wes had all of his morning OT and PT and then at noon he had to be ready to leave for a spring training game, The Oakland A’s vs. The Chicago Cubs.
His physical therapist, Barb, came into the room at 8:00AM, which is early for Wes, to stretch him out while he was still in bed. Remarkably, Wes was cheerful for that time of the morning. Now, you may be reading this and thinking to yourself that sleeping in until 8AM doesn’t sound too bad; however, when you think about how Wes doesn’t settle down until about 11:30PM and then is woken up every two hours and rolled to one side or the other with pillows under him and then he gets up for 30 minutes at 3:00AM for 30 minutes for the nurses to check his vital and do some nursing procedures, 8AM starts to sound a little too early to be up. Since the accident, Wes has not been able to enjoy a full night of sleep. Even Barb was surprised that he was cheerful as she stretched and moved stiff and sore muscles.
On Monday night, my mom noticed that Wes was leaning forward against his chest strap in his wheelchair. Later in the morning when Wes had Barb again for more physical therapy my mom mentioned to Barb what she had noticed. Barb was a bit skeptical but shook her head in agreement. She changed her regular routine from sitting and balance to sitting and moving his head and shoulders forward.
The first time Wes moved forward like she wanted, Barb exhibited a very controlled excitement, Wes did it again and again as she excitedly encouraged him. After about 5 minutes of this Barb looked up at my dad and asked him, “Why aren’t you filming this?” My dad was so caught up in the moment he had forgotten. He began filming as Wes leaned forward on his own and then moved back… he did this over and over. Barb then asked Wes to rock his shoulder back and forth, which he was able to do. Barb then asked Wes to lean forward and rock his shoulders and was very excited to see that he could do this as well. Barb said that it was amazing. She said, “This is a big deal, it is huge.”
It means somewhere he has some stomach muscles and some lower back muscles kicking in. With these movements, given time, Wes can learn to move from one chair to another, sliding his own body under his own control. As we build up his neck, shoulders, forearms, wrists, thumbs, fingers, stomach and back, and strengthen them, miraculous things will take place. They are already taking place. Watch the recent videos and see his progress. They are posted below.
At noon Wes was loaded into one of the two buses with approximately 12 patients and addition family members and was on his way to the spring training game. My parents followed behind the bus in their car. They were able to make it a family event. Brittnee and Nate and their family along with Dallin and Ashley and their family met us at the ball park. My parents had a lot of fun with their grandkids and it was nice for everyone to be together.
For those of you who know my dad well, he does not like crowds. He would much rather be home with his family than in a crowded place. He is also not much of a baseball fan. It was interesting for him to watch Wes maneuver around the crowds and obstacles, my dad admitted that Wes navigated the crowded areas better than he did. It was a nice sunny afternoon and the weather was perfect. It was in the mid 50’s and for Wes, who loves Montana, loved the cooler weather.
They stayed at the baseball game for about two hours, my dad writes, “I never learned the final score of the game, but as far as our family goes, it was a big hit.” Wes was worn out by the event and when they got back to the hospital he was ready to pass out. He has not been feeling well for the past few days. My mom suspects that he may have a UTI, which is an infection. Wesley’s nurse didn’t think that was the case but my parents were determined to figure it out. They demanded that she call the doctor and inform her of their UTI suspicions. It’s a simple test and they will find out the results tomorrow.
Tonight, my Grandma Connie came at about 9:45 PM to give Wes a massage, which helps him relax and sleep better. She comes by frequently and works on him. She also has a friend who is a professional massage therapist, Louis, and he comes by often to help relax and stretch Wesley’s muscles.
My Dad writes, “Tonight when everyone left and things were quiet, Wes asked me to give him a blessing. He often does this and it never ceases to amaze me as to the immediate relief this brings to him. He has great faith and very frequently it seems the windows of heaven are opened and great blessings result for Wes. This was an awesome and eventful day for Wes, filled with miracles.”
Wednesday, March 22, 2012
My parents woke up early and let Wes sleep as long as possible. Every moment of sleep helps heal his tired body. As they were getting Wes ready for this day, my brother-in-law, Nate, showed up to relieve my parents so they could start the process of shopping for a wheelchair accessible van. The vans they are looking at will help easily transport Wes. This will especially be needed when he begins out-patient therapy in about five weeks. It will also convert to his mode of transportation as he learns to drive again, be self sufficient and mobile. Eventually, by remote control he will open the sliding door on the van and a ramp will fold down, he will drive into the van and his wheelchair will be the driver’s seat. He will maneuver his chair into place and it will automatically be secured. He will be able to push a button and the ramp will fold back in and the door will shut. It is a very necessary process to help him be independent and allow him the transportation he needs to go to school at BYUI.
Wes began his workouts and my parents left to look at vans. Wesley was feeling weak and one of the nurses told Nate that Wes did indeed have a UTI. They started antibiotics immediately and hopefully tomorrow Wes will start to feel better. My dad writes, “I am very grateful that Karen insisted that he be tested because it could have gone on for a few more days until it was noticed by someone else, like a doctor or a nurse or by a high fever.Our Heavenly Father is definitely helping us out when we stop to listen. Wes was not able to eat much today because the infection also caused him to be weak and nauseous. It was all he could do to complete all this therapy, the last 30 minutes of which, was done in his bed. He ate no dinner but just drank a little bit before bed. Tomorrow should be a much better day.”
My parents have been working with Wesley’s caseworker at the hospital. They have gotten permission to take Wesley out of the hospital for two very special events in April. On April 1st, he will be transported to my Grandma Benson’s house to watch the last session of General Conference and eat Grandma’s tradition feast with the rest of the family. General Conference is a televised church meeting that happens every six months. Prophets and apostles are able to speak to us. The two weekends a year that this occurs are generally my favorite weekends of the year.
The next Sunday, which is April 8th, he has received permission to attend Sacrament Meeting for his cousin’s missionary homecoming and then to attend a huge family gathering and dinner. Craig is returning home from a two year mission in Africa. In both of these cases, the hospital had to get permission from our insurance company to be able for Wes to attend. A special thanks to all those who were involved in helping to make this happen.
My Dad included one last miracle in his e-mail to me from yesterday. I’ll quote it directly, “Late this afternoon Wes started complaining about a pain in his left hip. It felt like a burning sensation and he was worried he had laid on it too long and that I might be the beginning of a bed sore. It was amazing that he was feeling the pain, but what was even more amazing, was that it was not the beginning of a bed sore, it was the scar on his hip where part of his bone was cut out to help fuse his neck. Up to now Wes has not felt any pain in his hip, which suggests some of his nerves are starting to make connections and swelling in the spinal cord is being reduced, which may result in signals getting through. Dr. Speth, in Montana, told us previously that the mot painful part of back surgery is getting the hip to heal after they have taken part of the bone for fusions. He said most likely Wes will not ever feel that pain because of his spinal cord injury. After family prayer tonight, Wes asked for another blessing to help his body deal with the pain so he could sleep. It is late at night while I am writing this and Wes is sounds asleep. I learn more from him and his faith than he learns from me.”
There are several videos posted below. They seem like simple movements but they are great improvements for Wesley. We are all thankful for the miracles that have been occurring.
Wednesday, March 21, 2012
A friend of mine recently made an announcement and I have been thinking about it a lot lately and just had to announce it on here.
I am a huge supporter of adoption. To me, the adoption process and the blessings that come from adoption are just as miraculous as the traditional way of having a baby is. The selflessness shown by the birth mothers plus the out pouring of love that comes from that special couple that have waited so long for a miracles fills my heart with light.
My friend, Kaydee, and her husband, Devin, recently announced that they are ready to adopt. I believe they have spent over a year filling out the necessary paperwork. I have never met anyone like them.
If you know of anyone that is thinking about putting a baby up for adoption please have them check out their adoption profile: https://www.itsaboutlove.org/ial/profiles/25826716/ourMessage.jsf
On the exact same note, I would feel terrible if I didn’t include another family looking to adopt. I have never met them but my sister tells me how incredible they are just about every day. I have read their blog and I wish that I could be a part of their family. Brigham and Sally have an adorable daughter and hoping to adopt again.
You can check this family out here: https://www.itsaboutlove.org/ial/profiles/24757608/ourMessage.jsf
Again, I hope that anyone reading this will keep these two families in mind if they know of a baby looking for a family. These families are wonderful and any baby would be lucky to be a part of them.
So again, I use this blog for personal reasons… I hope that is ok.
Tuesday, March 20, 2012
Wes continues to make improvements in several areas. His neck is getting stronger and you can see that he holds it higher and is able to last longer in the wheelchair. The last few days he has been up in the chair for at least 10 hours. His endurance and strength are improving. He is also developing more strength in his chest, arms, and wrists. We see he is doing well but when working these areas out he quickly fatigues. He has come very far since we came to the rehab center one month ago.
Last Saturday marked the six week mark since his injury. We are hoping this week will allow him time to start doing some homework. His days are usually scheduled with Rehab until 2 or 2:30 PM often there is a class after that. We were told he will be here another 5-6 weeks. The whole purpose of in-patient rehab is to strengthen his core, develop strength in his neck, shoulders, arms, and wrists, and develop more movement in his hands. He is learning how to roll on his side with little assistance and coordinates both arms working together. Many of the exercises he is doing develops the muscles he will need to completely feed himself, brush his teeth and comb his hair. He has already learned some great skills at driving his wheelchair. Because of his right shoulder injury, he has learned to operate his wheelchair left handed. This week the controls will be changed over to his right arm. This will help increase strength and control in his right arms and shoulder.
will be restored and it will require much work from Wesley. Please continue to keep Wes in your prayers great things are happening. We love you all.
Thursday, March 15, 2012
Monday March 12
Wes went back to therapy today. He is getting stronger. The progress he has made is nothing short of miraculous. It is nice to go back and watch earlier videos and compare them with his therapy now.
Next Tuesday Wes gets to go to a spring training baseball game, The Oakland A's vs. The Chicago Cubs. For Wesley, going out in public in his wheelchair is exhausting and physically demanding. Wes is staying in his wheelchair longer and longer and because of this, his posture is getting better. He is holding his neck higher and stronger and his voice is also getting strong. He went out to eat at a pizza place for lunch today.
Wesley's sense of humor is also getting stronger. Monday night he asked my dad to please get him a fruit by the foot. My dad, being the king of 'dad jokes, reached down into a box and pulled out an apple then placed it by his foot. At first he gave my dad the look that only he can give and then fought back a smile which eventually turned in to a a laugh. He was probably thinking how weird my dad can be.
Dallin and Ashley and their family brought dinner. Wesley enjoys giving his nephews rides on his wheelchair more than anything. Canon got a lot of rides after dinner.
His outing to a pizza place for lunch.
Tuesday, March 13, 2012
On Devynn's birthday, they brought a cake to the hospital to celebrate. They all sang to her and had a really good time.
Monday, March 12, 2012
Well, Wes made some good progress today, he is a fighter and basically pretty awesome. He’s slowly gaining strength and making improvements, I’m not sure specifically what those improvements are but I will let you know when I find out, but I am sure they are pretty spectacular! Yesterday Wes got a new nurse too, whose name is Todd, Todd is a he, and contrary to popular opinion men can be nurses. It did not take them long to realize that Todd is a member of our church. After just a few minutes of talking, my dad realized that Todd had married the daughter of my dad’s best friend from childhood. Rodger and my dad did everything together from the age of 9(ish) until my Dad’s family moved from Arizona to New Mexico. They had not seen each other in over 30 years, what a reunion that must have been. They would spend all of their summers and Saturdays riding horses and driving cars at his father’s car lot at Townsend Motors. When he realized who Todd’s father in law was, my dad asked him to let Rodger
know He was in the hospital with his son (Wes). Todd told him that his father in law does not do hospitals and that he was sorry because Rodger would probably not come visit, but he would tell him anyway. Well surprise, surprise, (but not really because my dad knew Rodger would come) today Rodger came by the
hospital for a visit. My dad said it was good to be back in touch with Rodger after all these years.
Today Wes got to take a field trip to a sweet gym, not Gold’s Gym, not any gym you all have likely heard of, but a sweet gym, a fantastically awesome gym where they teach cool skills, a gym that helps fellows like Wes, and if they work hard, they improve by leaps and bounds! It really was an amazing place. It had basketball courts, sport courts (I’m not sure what a sports court is but it sounds cool), indoor track, therapy pool, lap pool, whirlpool, fitness training equipment and rock climbing wall. Some of the cool programs that they train for there are: adaptive rowing, sports programs (again, sounds cool, but I’m not sure what it entails), nutrition education, recreation programs, wheelchair basketball, Yoga, aquatics,
swimming, quad rugby (this one gets my vote, it would be pretty cool to play and even better to watch) and power soccer. For the most part, this was Wesley’s therapy today. He got to ride in a bus today that has a power lift on it, so he could just pull up to the lift in his wheel chair and get hoisted up into the bus. They strapped his chair in to the lift with him in it, and up it went. It’s like a four foot one way ferris wheel! This was his first time on the cool bus/carnival ride and his first time away from the rehab center, it was glorious. The trip was also a way to get him out into public a little more, get some exposure with people outside of the rehab center and just be away from the rehab center and help him remember that there is more to the world than that place. After that was done, Wes had another hour of therapy. Wes also had a guy come in this afternoon and that started teaching Wes about the program “Dragon,” which is voice recognition software that converts words to text; after you learn it you don’t need hands to use the computer anymore, pretty high tech, yeah?! It will take him a couple of weeks to get this program down, so if there is anyone in Phoenix that has skills relating to Dragon wouldn’t mind helping Wes out, we would be more than happy to accept the offer. Wesley continues to receive packages and letters from our friends and his school in Three Forks, MT, he loves getting these letters! We cannot thank you all enough for your kindness. It really does help him to know about all of the people that are thinking of him and praying for him. This can be taken as incentive to the rest of us to send him cool letters and what not that will brighten his day! Do it, write letters!!! Tonight was Devynn’s birthday (Wes’s little ginger niece), so Brittnee and her whole family came down with a cake so that they could sing to her and have a little birthday party for her, that was pretty fantastic and fun, I’m glad Ryanne, Ben and I were there for that… Dal and Ash also came down with Ashley’s parents and brought dinner for Wes. He ate pretty well tonight which was good because he is losing a touch of weight (if you can’t tell from the pictures). Dallin also decided that he and Wes would have a slumber party tonight down at the hospital too, giving Mom and Dad a chance to go sleep somewhere other than the hospital for the first time in a few weeks. Thank you Dal, you are a doll.
Wes and I worked on our own today for about two hours. While Wes and my dad did this the girls went out for Devy’s birthday and pedicures, Dev loved it. Later that evening Wes needed the
nieces and nephews to come crawl all over him, so Brittnee and Nate obliged and the kids came
over to accommodate him. Thanks for everyone’s kindness and prayers; they have truly been felt in the last five weeks since the accident. Miracles can still happen, it is never to let for them to happen. We continue to pray for them and as far as things that we are praying for right now, we want to continue to see more hand movement and strength in the hands.
Friday, March 9, 2012
I have somewhat of an announcement that may or may not affect this very blog over the next few weeks. My dearests husband and I are moving. It's true... we are leaving Louisiana.
If I had to sum up our life here in Louisiana in one word, it would be 'food'. We have enjoyed our time here and have had some amazing food and also quite a bit of not so amazing food. It took me a while but I am now in love with Raisin' Caine's Chicken. Louisiana has given me a lot of material to make up stories for my neices and nephews; most of which are centered around gators. Ben and I have almost been eaten by huge alligators several times (;
Where are we moving, you ask? Here is a hint... kind of
Wednesday, March 7, 2012
Wes was still somewhat sick but is doing better today. He made all of his
therapy but was weak. He had a great nights sleep, longer hours.
Wes was still a little weak but had some very great workouts in therapy
today. Up to this point you could say he had his very best workouts
ever. Wes is learning how to roll over and is making tremendous progress.
He was putting rings on posts today and balancing himself with the arms
and wrists. We are very encouraged by his efforts. He is still extremely
tired after all his workouts.
Tuesday, March 6, 2012
everything and that mind over matter always works, even when experiences in my life have taught me differently. I have a tendency to outline the day and expect for that day to go just as I have planned it. I had it in my mind that Monday would be a very productive day for Wes and that much would be accomplished in therapy, especially since there were no workouts on Saturday or Sunday. I was a little anxiety driven because what I thought would happen, did not happen. It is good for me to have these types of days once in a while to teach me and remind me what really matters most. It also gives me time to reflect and thank Heavenly Father for our blessings.
watch R rated movies, if a TV show is to provocative he will turn the channel or TV off. Repeatedly I will start to watch something and he will tell me I don’t think you will like that show. It was kind of rough and I
had to turn it off. He treats young women with kindness and respect. To put it simply in a Latter-Day –Saint standard he is a priesthood holder and he honors his priesthood. With that understanding into his morals,
think how uncomfortable it is to have a nurse shower and bathe him or put a catheter in, or to have her clean him up after he has had a bowel movement. All of these things cause him sever stress and strain. He wishes
he could run and never look back. He has me put a wash rag over his head during these processes so mentally he can hide. I don’t share these things with you to embarrass Wes but to give you some insight into what all young people deal with who might find themselves in such difficult circumstances.
certain amount of comfort that comes, having me involved in almost all aspects of his care, even if it is to only hold the washrag over his face so he mentally can run and hide. During the last 48 hours they had to
remove his catheter because of the physical pain and suffering and yet there is even a blessing in this because it appears he is able to urinate on his own without the necessity of the catheter. This morning one of the
head nurses told us it was hard for her to believe he was doing this on his own so early in the process. The jury is still out on this but it appears that is the case.
(I’m sorry he really is not a little boy, but he is our little boy)."
Hatten, had a staff member, Sylvia, and her team put together this amazing feast for Wesley. It was such a random, generous act of kindness that did more than they knew in lifting his spirits on such a down day.
so that Wes could graze on his favorite food for the next couple of days. In Montana we do not have a Chick-Fil-A and this was one thing that Wes really missed about our move from Arizona to Montana. We cannot thank Chick-Fil-A enough for their kindness. This is a company that is much like Wesley. They have integrity, they try to give back to the community and they are not open on Sunday. They believe that Sunday is a day to worship and spend with your family. Our hats are off to Chick-Fil-A, we will never forget this and will always be a fan, especially to the Phoenix location at Tatum and Cactus.
Handmade card from the staff
My two sisters are going to kill me for saying this but just for your information the two little boys in this picture are, in fact, boys. Not girls. This is an aunt's petition for a hair cut.
The delicious table of food
Jim, Cow, Penny and Wes
Quentin L. Cook, an apostle.
we mourn and strive to bear one another’s burdens. We lament the things that will not be accomplished and the songs that will not be sung.
righted, and we will see with perfect clarity and faultless perspective and understanding.
evil—this life can seem depressing, chaotic, unfair, and meaningless. Church leaders have compared this perspective with someone walking into the middle of a three-act play. Those without knowledge of the Father’s plan do not understand what happened in the first act, or the premortal existence, and the purposes established there; nor do they understand the clarification and resolution that come in the third act, which is the glorious fulfillment of the Father’s plan.
but is true in spiritual matters.
limited understanding, we lament the things that will not be accomplished and the songs that will not be sung. This has been described as dying with your music still inside you. Music in this case is a metaphor for
unfulfilled potential of any kind. Sometimes people have made significant preparation but do not have the opportunity to perform in mortality.
Sunday, March 4, 2012
making incredible progress. The patients here are all heroes. We are grateful to these people and the things we are learning from them. They are impacting our lives."
The pain was still there but not as strong. Wes stayed in bed all day but was in good spirits. More friends came to visit from grade school and middle school and we enjoyed old friends. Brittnee came to visit with the grand kids and stayed for a few hours. Mom and Dad took the kids for a walk so Britt and Wes could enjoy a visit together.
Wesley with his nephew. So cute. I love this picture because Wes is showing some teeth in his smile.
Friends Wes grew up with, Sam and Zach.
Saturday, March 3, 2012
Thursday, March 1, 2012
Here is your 'Random Ryanne Fact'... I can't really think of one. That oyster deal was pretty much it. There really isn't anything else random about me. That is ok though, because everyone reading this blog is wanting updates on my little brother and not on me. In fact, I am sure most will skip over this paragraph.
On Monday, it was nice for Wes to get back into routine after his little Sunday break, even though his routine is a lot of work. Wesley has been working so hard with his therapy. His shoulders and neck are really tight and sore, but he is working so hard that they will be strong soon.
Wesley's appetite is slowly returning. He still dislikes the hospital food quite a bit but he gets some cravings and my parents are more than happy to oblige to those cravings because he needs to eat. On Monday he wanted some KFC, luckily, there a place near by and he got his fried chicken. My aunt and uncle brought him dinner on Monday night and it was fun for him to eat some good food and have nice visitors.
A neurosurgeon, Dr. Porter, came into Wesley's room at 7:00AM. Last week my dad had given him a copy of all of Wesley's scans and x-rays before and after surgery. Dr. Porter confirmed something we already knew. The doctor who did the surgery, Dr. Speth, did an amazing job. No one cold have done a better job. We were tremendously blessed to have such a skilled surgeon in Bozeman, MT. Our family considers that a miracle.
Barrows also had a football player from the AZ Cardinals come by and visit Wesley and another patient, Dylan. His name was Lyle Sendlein and he brought hats and helmets for the boys. It was a nice break in their day and they enjoyed the visit.
Later on Tuesday, my sister, Brittnee, came by with her children and some dinner. Wes loves having his nieces and nephews near by. They are always fun.
Tuesday night was pretty tough. Wesley had a lot of itches and so my parents took turns helping him itch his face. Finally, around 3:30AM he settled down and fell asleep.
Wesley's seminary class called at 7:30 AM. Seminary is a church class that high schoolers attend Monday through Friday every morning before school. He was able to speak with everyone in his class. This was the highlight of Wesley's day. He misses Montana and his friends there.
My sister-in-law, Ashley, came to visit with her two boys and Brittnee's little 2 year old. Wes had fun chasing the two boys in his wheel chair. It is amazing how much joy can come into his life when these two little boys are around. They love him no matter what.
Wes did a fantastic job in rehab today. All the therapists were surprised at the progress he made. Wes is gaining strength and endurance quickly.
My parents purchased a small video camera as well on Wednesday so hopefully we get some more videos up on here. Wesley will be able to show off for everyone.
Overall, Wesley is doing well. He is a great patient and the nurses enjoy having him. He is cheerful and tries his best to be positive.